Quote:

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The registry welcomes both male and female volunteers who have been diagnosed with one of the illnesses, or who think they may have symptoms. The registry also needs healthy individuals to serve as control subjects for the studies.

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... ]]> feeds@yuku.com (Rockerwoman) http://sunshine35446.yuku.com/topic/2137 Fri, 08 Oct 2004 17:36:00 GMT http://sunshine35446.yuku.com/topic/2143/t/Congressional-advocacy-links.html www.webslingerz.com/jhoff...email.html

If you want to email your congressmen to advocate for better health care, or recognition as Fibromyalgia as a real disease, whatever, here they all are...

Its election time soon! For once, they might do well with a bug in their ear. Nearly everyone these days has a family member with FMS or CFS. If anything copy and paste credible info for them like... ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2143 Thu, 16 Sep 2004 10:59:08 GMT http://sunshine35446.yuku.com/topic/2138/t/Patients-frequently-asked-questions-about-Fibromyalgia.html www.muhealth.org/%7Efibro/fm-pt.html

a more scientific FAQ's
www.noah-health.org/engli...o/cfs.html

Rheumatology FAQ's
feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2138 Wed, 15 Sep 2004 00:42:36 GMT http://sunshine35446.yuku.com/topic/2129/t/-quot-Nobody-Understands-quot-Fibromyalgia.html www.paintracking.com/fms07.html

Great article by a specialist who has it herself. Starts like this:

The other day, during a casual conversation, a friend told how she had explained my condition (fibromyalgia) to someone else:

feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2129 Wed, 15 Sep 2004 00:15:54 GMT http://sunshine35446.yuku.com/topic/2183/t/Quick-info-about-Fibromyalgia-and-Chronic-Fatigue-Syndrome.html www.cfsfibromyalgia.com/l...prev.htm#8

WEB SITES
TESTING RESOURCES
PATIENT ORGANIZATIONS
PROFESSIONAL ORGANIZATIONS
PROFESSIONAL & PATIENT CONFERENCES
FINDING DOCTORS & MEDICAL PROFESSIONALS
CHIARI MALFORMATION RESOURCES
PREGNANCY AND... ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2183 Fri, 09 Apr 2004 05:13:46 GMT http://sunshine35446.yuku.com/topic/2149/t/Living-well-with-Fibromyalgia.html
www.cfsfibromyalgia.com/i...tslist.htm
extensive suppliment list
feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2149 Wed, 17 Mar 2004 12:39:09 GMT http://sunshine35446.yuku.com/topic/2201/t/Symptoms-of-Fibromyalgia-and-Chronic-Fatigue-Syndrome.html
Fibromyalgia and Chronic Fatigue Symptoms

General Central Nervous System Emotional Equilibrium Perception Pain Sleep
General Symptoms
Allergies FMS and CFS
Canker Sores CFS
Cough CFS
Dry Eyes and Mouth FMS
Fatigue - This symptom can be mild in... ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2201 Wed, 17 Mar 2004 11:13:17 GMT http://sunshine35446.yuku.com/topic/2178/t/Pain-Chart.html groups.msn.com/Dealingwit...chart.msnw ]]> feeds@yuku.com (Sunshine56) http://sunshine35446.yuku.com/topic/2178 Sat, 28 Feb 2004 21:04:39 GMT http://sunshine35446.yuku.com/topic/2148/t/Search-for-a-FMS-CFS-cure-we-are-not-alone-anymore.html
02-18-2004

By Mariko Thompson
Plagued by such extreme pain and fatigue that she couldn't leave her bed, Lynne Matallana thought she had lost her mind. What she did lose was 2 1/2 years of her life. That's how much time passed before doctors finally diagnosed her with fibromyalgia, a chronic illness in which the body's pain response goes... ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2148 Thu, 19 Feb 2004 02:59:00 GMT http://sunshine35446.yuku.com/topic/2160/t/Search-for-a-FMS-CFS-cure-we-are-not-alone-anymore.html
02-18-2004

By Mariko Thompson
Plagued by such extreme pain and fatigue that she couldn't leave her bed, Lynne Matallana thought she had lost her mind. What she did lose was 2 1/2 years of her life. That's how much time passed before doctors finally diagnosed her with fibromyalgia, a chronic illness in which the body's pain response goes... ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2160 Thu, 19 Feb 2004 02:59:00 GMT http://sunshine35446.yuku.com/topic/2228/t/Nutrition-and-diet-for-Fibromyalgia.html www.holistic-online.com/R...rition.htm

some pretty thorough ideas here, and also this:
www.holistic-online.com/s...s_home.htm ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2228 Wed, 14 Jan 2004 06:24:17 GMT http://sunshine35446.yuku.com/topic/2236/t/Migraine-Headaches-and-Fibromyalgia-CFS.html www.google.com/search?hl=...gle+Search

Heres more:
fmscanberra.healingwell.c.../mh/mh.htm feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2236 Sun, 11 Jan 2004 05:06:23 GMT http://sunshine35446.yuku.com/topic/2154/t/How-to-read-lab-results-FMS-CFS.html I have the results and don't know what some of them are? ever hear of "absolute"? there's about 12 different one on my report, I want to know what my dr. was looking for.
thanks. ]]> feeds@yuku.com (ebrbetty) http://sunshine35446.yuku.com/topic/2154 Mon, 22 Dec 2003 06:39:08 GMT http://sunshine35446.yuku.com/topic/2210/t/lab-results-.html I have the results and don't know what some of them are? ever hear of "absolute"? there's about 12 different one on my report, I want to know what my dr. was looking for.
thanks. ]]> feeds@yuku.com (ebrbetty) http://sunshine35446.yuku.com/topic/2210 Mon, 22 Dec 2003 06:39:08 GMT http://sunshine35446.yuku.com/topic/2240/t/25-of-25-fibromyalgia-patients-tested-positive-Lyme.html feeds@yuku.com (kiturah) http://sunshine35446.yuku.com/topic/2240 Sat, 13 Dec 2003 07:07:38 GMT http://sunshine35446.yuku.com/topic/2241/t/Spine-research-disc-treatments-electrical-stimulation.html www.spine-health.com/research/res01.html

Interesting info ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2241 Fri, 12 Dec 2003 13:01:27 GMT http://sunshine35446.yuku.com/topic/2177/t/Chronic-Fatigue-Fibromyalgia-and-the-Thyroid-.html Autoimmune Thyroid Disease
A Thyroid Disease Website/Chronic Fatigue Website
Collaborative Article
Dateline: 09/08/97

This week's article represents a collaborative effort of your Thyroid Guide, Mary Shomon, and your Chronic Fatigue/Fibromyalgia Guide, Donna Yeaw, who look at the relationship between chronic fatigue, fibromylagia and autoimmune thyroid disease.


First, let's define the three diseases... ]]> feeds@yuku.com (Rockerwoman) http://sunshine35446.yuku.com/topic/2177 Thu, 27 Nov 2003 21:24:53 GMT http://sunshine35446.yuku.com/topic/2141/t/How-can-Viruses-act-like-Fibromyalgia-.html www.immunesupport.com/lib...PROD=PH171

CENTRAL NERVOUS SYSTEM

Because the effects of this illness are primarily due to AFFERENT tracked... ]]> feeds@yuku.com (EBGirl) http://sunshine35446.yuku.com/topic/2141 Tue, 28 Oct 2003 14:21:05 GMT http://sunshine35446.yuku.com/topic/2156/t/Is-Chronic-Fatigue-Syndrome-Related-to-Stress-Response-.html
Chronic fatigue syndrome is characterized by debilitating fatigue that can include including muscle aches, low-grade fever and sleep disturbances. Its cause is not understood.

Good info.... feeds@yuku.com (Rockerwoman) http://sunshine35446.yuku.com/topic/2156 Thu, 09 Oct 2003 23:26:38 GMT