How do you cope when you can't sit?

Re: How do you cope when you can't sit?

feeds@yuku.com (matisse) — Wed, 23 Sep 2009 16:44:29 GMT

There is a revolutionary new way to help back pain from herniated discs and or facet joint issues. It's called "Neuro-Oxygen Decompression" treatment here in Canada, and the govt of Canada plus the US's FDA have approved it as a treatment. They give you oxygen to breathe during the treatment, so as the joints are pulled open and the discs can reexpand, they have access to the oxygen and can begin to repair themselves. Afterward, you get a shot of heavy duty anti-oxidant...

Re: How do you cope when you can't sit?

feeds@yuku.com (pelvicpain4ever) — Wed, 16 Sep 2009 16:32:18 GMT

Hi Penny,
Yes it is difficult as one can't stand up forever without feeling like falling over eventually! Being young I would like to do fun young people things such as go to concerts...but I can't sit on the hard plastic seats even with a cushion, and I can't stand up for hours either. So I must stay home while my boyfriend enjoys life and it is quite sad. If only the world was full of comfy couches to lay on!

Re: How do you cope when you can't sit?

feeds@yuku.com (ponolops) — Wed, 16 Sep 2009 09:57:47 GMT

Hi Laurie. Sorry it's taken me so long to reply to your letter but I have been away.

Your description of a day out mirrors my own exactly. Wherever I go, I have to stand. I get weird looks in cafe's when my friends are sitting am I am trying to eat cake and drink tea standing.

I often lie on benches when I feel I can't stand anymore.

It is indeed an invisible disability and I have often said that people in wheelchairs are better treated and have...

Re: How do you cope when you can't sit?

feeds@yuku.com (Blue Birman) — Sun, 13 Sep 2009 18:59:46 GMT

Welcome to Friends Laurie! I can relate to a lot of things you are saying, I also have sitting disability because of multiple low back surgeries, and one pelvic surgery.
I have fusions in my back and also a pelvic fusion, but the surgeries were not successful, so the pain with sitting is bad. Sometimes I force myself to sit, on planes when going on holiday or have important meetings going on. But it should be alloud to lay down on planes, sometimes I have to lay on three seats, my hubby...

Re: How do you cope when you can't sit?

feeds@yuku.com (sittingdisabled) — Sun, 13 Sep 2009 01:27:19 GMT

Hi Laurie, I can't read your entire post due to tech problems with my computer but I read the part Mosken sent to some of our emails -- enough to get an idea of what's going on. I have had sitting disability for 5 years. Main thing I want to say is that it is sometimes possible to heal, at least to a point. I have had sitting disability for over 3 years before I started improving. Before then I could sit in an ordinary chair for only about 20 minutes, and it was a rough 20...

Re: How do you cope when you can't sit?

feeds@yuku.com (Kinga27) — Fri, 11 Sep 2009 09:27:56 GMT

Welcome Laurie. I look forward to see you around.
We learn so much about coping from each other and this forum has been very valuable for me

Re: How do you cope when you can't sit?

feeds@yuku.com (Implant Info Net) — Fri, 11 Sep 2009 01:43:27 GMT

Welcome to the forum, Laurie!
You have come to the right place for both information and support. I too have problems sitting. Thankfully, mine is slightly better at the moment but I can feel it beginning to flare up again.
These great people here at the board have been my inspiration in finding ways to deal with and/or cope with the chronic pain.

Hope to see you aroung the board..

Rosie...

Re: How do you cope when you can't sit?

feeds@yuku.com (kiturah) — Fri, 11 Sep 2009 01:21:08 GMT

I emailed you.

Re: How do you cope when you can't sit?

feeds@yuku.com (pelvicpain4ever) — Fri, 11 Sep 2009 01:09:12 GMT

kiturah wrote:
I live in California also, in the San Jose area. If you are close we should get together at least once so you can try out my reclining wheelchair. My form of pain and indeed sitting disability is different than yours, but we have some similar elements. I cannot sit on unpadded chairs for more than a few moments. I do have trouble sitting even on padding for a long time, and solve some of those problems with my...

Re: How do you cope when you can't sit?

feeds@yuku.com (kiturah) — Thu, 10 Sep 2009 16:09:29 GMT

Welcome Laurie,

I live in California also, in the San Jose area. If you are close we should get together at least once so you can try out my reclining wheelchair. My form of pain and indeed sitting disability is different than yours, but we have some similar elements. I cannot sit on unpadded chairs for more than a few moments. I do have trouble sitting even on padding for a long time, and solve some of those problems with my carefully set up reclining wheelchair. I push it around...

Re: How do you cope when you can't sit?

feeds@yuku.com (granny ja) — Thu, 10 Sep 2009 00:20:05 GMT

Welcome Laurie to our cyber home. So sorry for you to have so much pain.
I have Fibromyalgia and, I have pain in my tailbone a lot since I have aged.
Nice to meet you, it would have been better under different circumstance tho.
Please hang in there. We have others with all kinds of pain and health issues.

Join us for sometime

Re: How do you cope when you can't sit?

feeds@yuku.com (Sunshine56) — Wed, 09 Sep 2009 21:03:21 GMT

This sitting disability makes me feel so isolated from the world, I stay at home most of the tme, because it's so difficult going anywhere, I get so tired and wish i could sit down and rest like everyone else. I don't want to socialize and things like. Another difficult aspect is that people just don't understand, because it is an "invisible" disability. You can't tell by looking at me how much pain I'm in, so people just don't understand...

Re: How do you cope when you can't sit?

feeds@yuku.com (pelvicpain4ever) — Wed, 09 Sep 2009 20:37:03 GMT

Hi, I am new to this support group. My name is Laurie, I'm 29 and live in California. I thought I was the only one with a sitting disability, it is nice to know I'm not alone! I have been sitting disabled for two years and have yet to meet anyone else who has to live like this. I have pudendal neuralgia, vulvodynia, contracted pelvic muscles, and sacroiliac joint dysfunction. Of course the saddest part of my life is never being able to have a physical relationship with my boyfriend...

Re: How do you cope when you can't sit?

feeds@yuku.com (Allis61) — Wed, 12 Aug 2009 20:34:51 GMT

DifferentThanMost wrote:
I do a lot of driving in my job and for some reason, sitting in the car doesn't bother me as much as sitting in my desk chair. That could be due to the fact that my driver's seat is softer and more adjustable.

The same goes for me. When in the car, driving myself, I can sit much longer without too much pain. I've always believed it has something to do with the...

Re: How do you cope when you can't sit?

feeds@yuku.com (DifferentThanMost) — Wed, 12 Aug 2009 15:22:19 GMT

I have tried Lyrica, but some insurances won't cover. My doctor prescribes me Gabapentin/Neurontin instead. It's mostly for neuropathy, but it also seems to help with my back pain. (One thing a pharmacist told me a long time ago, was to NEVER take Lyrica and Neurontin at the same time.) Gabapentin also makes me sleepy, so I have two different strengths. The stronger pills are for at night and the lesser ones I'll take during the day, but only when I'm really hurting.
...

Re: How do you cope when you can't sit?

feeds@yuku.com (matisse) — Mon, 10 Aug 2009 05:26:19 GMT

Sorry about previous message- it was a failed attempt to quote the Sunshiners' comments re Lyrica

Re: How do you cope when you can't sit?

feeds@yuku.com (matisse) — Mon, 10 Aug 2009 05:23:54 GMT

By the way, everybody, I don't know if anyone has tried Lyrica yet, but I just want you to know that I have heard horrible things about the side effects of this drug, and I myself had a very difficult experience being on it. It broke me down to a low I've never been to before. I know it's different for everybody but from what I understand, if this drug can help you, it will help you quite quickly. My neurologist suggested I change from Gabapentin to...

Re: How do you cope when you can't sit?

feeds@yuku.com (matisse) — Mon, 10 Aug 2009 05:15:05 GMT

Penny- my main strategy has been clinging to the hope of a surgical solution to my spinal problem, but doctors and others have been trying to get me to give up. I have a special chair, was about $1600 CDN, that keeps me at an angle where my weight is evenly distributed, but it does not come in a mobile model. I keep trying to convince others how jealous I am of pain free paraplegics who can go just about anywhere, and can WORK at a sit-down job. If they can do this to me surgically, I will go...

Re: How do you cope when you can't sit?

feeds@yuku.com (dhabi) — Thu, 02 Jul 2009 19:29:36 GMT

cantsit, i had the same aversion to sitting throughout school. although it didn't hurt me as much then as it does now, the idea of sitting all day long in a classroom was torturous. one of the many reasons school was not for me.

i'm sorry to hear you had such a bad experience with lyrica. i just started taking it 2 weeks ago and so far no bad side effects. however i did have trouble with concentration before, which i understand to be a part of fibromyalgia. my memory has...

Re: How do you cope when you can't sit?

feeds@yuku.com (Sunshine56) — Thu, 02 Jul 2009 18:58:41 GMT

Hello again! Many of us with typing problems use headsets to talk to each other. It is free and you can use any free messenger like Skype, MSN, Yahoo or whatever you prefer. Have you ever tried that?

Read our topic here:

http://sunshine35446.yuku.com/topic/641

How do you cope when you can't sit?

feeds@yuku.com (ponolops) — Mon, 26 Mar 2007 21:05:16 GMT

As a relative newcomer here, I thought I would settle in before I asked advice. ">

I see from the sitting disability topic, there are about 10 of you out there that like me, cannot sit at all, or for long. ">

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