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        <title>How do you cope when you can't sit?</title>
        <link>http://sunshine35446.yuku.com/topic/1160/t/How-do-you-cope-when-you-can-t-sit-.html</link>
        <description>
        <![CDATA[ As a relative newcomer here, I thought I would settle in before I asked advice. &quot;&gt;


I see from the sitting disability topic, there are about 10 of you out there that like me, cannot sit at all, or for long. &quot;&gt;


How do you cope with life? &quot;&gt; I get terribly bored as I have lost so much of
the life I knew. &quot;&gt;


I miss going to restaurants, the cinema and on holiday.

We did go away for a few days last October but I was in a lot of pain  and really wanted to
be... ]]>
        </description>

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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/41273/t/How-do-you-cope-when-you-can-t-sit-.html#reply-41273</link>
			<description><![CDATA[ As the odd man out, I will say I was the odd man out. I couldn&#39;t sit for long without a lot pain and starting to feel faint. I carried a back rest which
helped. I learned to sit up with my feet crossed Indian style ALL the time, long before I knew I was sick, because my blood pressure was dropping, and this
maintained a more stable blood pressure. After it got bad and I would suddenly lie down on the floor or ground or chairs wherever I was, I asked my doctor to
write a note saying must... ]]></description>

			<!-- optional elements -->
			<author>feeds@yuku.com (kiturah)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/41273</guid>
			<pubDate>Tue, 01 May 2007 18:21:16 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8221/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8221</link>
			<description><![CDATA[ Penny <!--EZCODE EMOTICON START :flower5
          --><img
          src=http://www.fms-cfsfriends.com/board4/flower5.gif
          ALT=":flower5"><!--EZCODE EMOTICON END--><br><br> I know just what you mean!
          Sometimes it doesn't seem to matter how bad you are: if
          you don't fall into a recognisable category it's nigh on
          impossible to fill in the forms with anything appropriate
          enough to be awarded Benefits.<br><br>
          That's why, in a way,... ]]></description>

			<!-- optional elements -->
			<author>feeds@yuku.com (jillybromley)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8221</guid>
			<pubDate>Wed, 04 Apr 2007 21:37:06 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8220/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8220</link>
			<description><![CDATA[ Hi Jilly<br><br> What a sweetie you
          are! Thanks for the 'test,' that was
          interesting.<br> The trouble with me is that I look
          so damned healthy! I go regularly to the Pain Clinic in
          hospital and everyone else there is either in wheelchairs
          or on zimmers/sticks. In I walk, I'm tall and try to
          always smile. Whilst waiting, I have to walk the hospital
          corridors as I can't stand anymore than I can sit and
          there's never... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8220</guid>
			<pubDate>Wed, 04 Apr 2007 16:48:33 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8219/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8219</link>
			<description><![CDATA[ Hello Penny <!--EZCODE EMOTICON START :flower5
          --><img
          src=http://www.fms-cfsfriends.com/board4/flower5.gif
          ALT=":flower5"><!--EZCODE EMOTICON END--><br><br> Re: Disability Benefits. <br><br> As you started this thread, I don't feel I'm
          hi-jacking it too much by picking up on something you
          mentioned in your post to Kairus that would only be
          relevant to UK readers. <br><br> Two years
          ago you had to be virtually in your... ]]></description>

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			<author>feeds@yuku.com (jillybromley)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8219</guid>
			<pubDate>Wed, 04 Apr 2007 06:30:26 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8218/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8218</link>
			<description><![CDATA[ Hello Kairus <!--EZCODE EMOTICON START :flower5
          --><img
          src=http://www.fms-cfsfriends.com/board4/flower5.gif
          ALT=":flower5"><!--EZCODE EMOTICON END--><br><br> Your questions about diet, fish
          oils glycosomine and exercise, and drinking 8 glasses of
          water. I think this is a good regime generally, to
          prevent or help arthritis setting into the back where
          there is damage or misplacement in the back.. But it
          sounds to... ]]></description>

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			<author>feeds@yuku.com (jillybromley)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8218</guid>
			<pubDate>Wed, 04 Apr 2007 06:19:24 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8228/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8228</link>
			<description><![CDATA[ Welcome, kairus1! I am sorry you are suffering like this!
<br>
<br>
Penny, thanks for giving such great advice! I have the same experience as you.... ]]></description>

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			<author>feeds@yuku.com (Sunshine56)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8228</guid>
			<pubDate>Mon, 02 Apr 2007 04:01:57 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8217/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8217</link>
			<description><![CDATA[ <!--EZCODE EMOTICON START :hello --><img
          src=http://www.fms-cfsfriends.com/board4/hello.gif
          ALT=":hello"><!--EZCODE EMOTICON END-->
          Kairus<br><br> I already eat 'sensibly' and
          always have. That's the bitch of it all! I was eating
          lots of fresh veg and fruit and drinking pints of water
          before it was 'fashionable' to do so. <!--EZCODE
          EMOTICON START :ex --><img
          src=http://www.fms-cfsfriends.com/board4/exactly.gif... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8217</guid>
			<pubDate>Mon, 02 Apr 2007 02:29:41 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8216/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8216</link>
			<description><![CDATA[ hi penny im sorry i didnt respond sooner, i really
          hope your mamogram comes out okay i pray thats what i do
          these days. I was wondering have you ever tride a drastic
          diet change? Im thinking of eating only........... lots
          of vegatables and fish, supplements fish oil and vitmains
          and glycosomine. and what ever exersice im able to do. im
          also trying to drink 1cup of wine a day for stress, and
          drinking 8 glasses of water a... ]]></description>

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			<author>feeds@yuku.com (kairus1)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8216</guid>
			<pubDate>Mon, 02 Apr 2007 01:04:27 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8215/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8215</link>
			<description><![CDATA[ Hi Kairus<br><br> Nice to see you
          back. <!--EZCODE EMOTICON START :great --><img
          src=http://www.fms-cfsfriends.com/board4/great.gif
          ALT=":great"><!--EZCODE EMOTICON END--> I am
          sorry I can't help you as I don't know the workings of
          the American health system, being <!--EZCODE EMOTICON
          START :uk --><img
          src=http://www.fms-cfsfriends.com/board4/english.gif
          ALT=":uk"><!--EZCODE EMOTICON END--><br><br> We have all had... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8215</guid>
			<pubDate>Thu, 29 Mar 2007 17:29:24 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8214/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8214</link>
			<description><![CDATA[ Hi penny thank you for responding. i was born in
          nyc and come from a colombian background. yea my doctor
          stoped giving me physical therapy and said to take the
          injection for facet joint and come back to see him in 3
          months. but i know for a fact that my insurane ran out so
          they couldnt continue my physical therapy. I havent been
          able to work for a year or more cause when i try to work
          i hurt my back so bad i have to lay for... ]]></description>

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			<author>feeds@yuku.com (kairus1)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8214</guid>
			<pubDate>Thu, 29 Mar 2007 09:11:23 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8213/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8213</link>
			<description><![CDATA[ When I have been at my worst,i had to lay in bed,i
          read mostly or crocheted.Or if i was sitting,i had to
          recline.currently,I can't sit up in bed much,it makes my
          hips hurt really bad.So i end up on my side if i am
          having problems,in which case...i watch TV alot.I try to
          watch something educational lol. ]]></description>

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			<author>feeds@yuku.com (skatergirlaj)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8213</guid>
			<pubDate>Thu, 29 Mar 2007 00:34:06 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8212/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8212</link>
			<description><![CDATA[ Dear Kairus<br><br> Firstly,
          <!--EZCODE EMOTICON START :welcome --><img
          src=http://www.fms-cfsfriends.com/board4/welcome.gif
          ALT=":welcome"><!--EZCODE EMOTICON END--> to
          this wonderful forum. The lady who started it, Mosken, is
          (to most of us) an <!--EZCODE EMOTICON START :angel
          --><img
          src=http://www.fms-cfsfriends.com/board4/angel.gif
          ALT=":angel"><!--EZCODE EMOTICON END--> in
          disguise!<br><br> I am... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8212</guid>
			<pubDate>Wed, 28 Mar 2007 15:19:15 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8211/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8211</link>
			<description><![CDATA[ :Help please i cant sit or stand for very long ,
          sit 10min ,stand10 i can walk about 3 blocks but have to
          sit.<br> im 35 years old male and i dont know whats
          happening to me. i have had back pain for 14 years but
          the last 3 years have been Hell. the doctors say i have a
          l5 degenrative dics slightly herniated,( and that theirs
          nothing wrong with me) i feel pain all the time. and i
          have no money. <br> can someone help me... ]]></description>

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			<author>feeds@yuku.com (kairus1)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8211</guid>
			<pubDate>Wed, 28 Mar 2007 06:03:24 GMT</pubDate>
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		<item>
			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8227/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8227</link>
			<description><![CDATA[ <!--EZCODE QUOTE
          START--><blockquote><strong><em>Quote:</em></strong><hr>MY
          BACK GOES OUT MORE THAN I
          DO!<hr></blockquote><!--EZCODE QUOTE
          END--><br><br><!--EZCODE EMOTICON
          START :rof --><img
          src=http://www.fms-cfsfriends.com/board4/rof.gif
          ALT=":rof"><!--EZCODE EMOTICON END--><!--EZCODE EMOTICON START :rof --><img
          src=http://www.fms-cfsfriends.com/board4/rof.gif
          ALT=":rof"><!--EZCODE EMOTICON... ]]></description>

			<!-- optional elements -->
			<author>feeds@yuku.com (Racing Red Granny)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8227</guid>
			<pubDate>Tue, 27 Mar 2007 23:36:26 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8226/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8226</link>
			<description><![CDATA[ Thought for the day. <br><br> I have a
          tin badge that I often wear when I go out.<br><br> It says.........<br><br><br> MY BACK GOES OUT MORE THAN I DO!<br><br><br> Ain't it the truth?<br><br><!--EZCODE EMOTICON START :rof
          --><img
          src=http://www.fms-cfsfriends.com/board4/rof.gif
          ALT=":rof"><!--EZCODE EMOTICON END--><!--EZCODE EMOTICON START :rof --><img
          src=http://www.fms-cfsfriends.com/board4/rof.gif
          ALT=":rof"><!--EZCODE EMOTICON... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8226</guid>
			<pubDate>Tue, 27 Mar 2007 22:34:31 GMT</pubDate>
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		<item>
			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8225/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8225</link>
			<description><![CDATA[ Hello Penny and everyone, This is an awsome
          topic!<br><br> Penny, I never got to
          officially Welcome you here....It's nice to meet you and
          glad you have joined the group. <br><br>
          This group has been a life saver for me... just knowing
          I'm not the only person who has problems like this really
          helps me.<br><br> I also have a sitting
          disablity and spend most of my days in a well
          &quot;memory foamed bed or recliner... ]]></description>

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			<author>feeds@yuku.com (Implant Info Net)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8225</guid>
			<pubDate>Tue, 27 Mar 2007 19:30:43 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8224/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8224</link>
			<description><![CDATA[ What wonderful replies. <!--EZCODE EMOTICON
          START :great --><img
          src=http://www.fms-cfsfriends.com/board4/great.gif
          ALT=":great"><!--EZCODE EMOTICON END--><br><br> Thank you girls for a glimpse of
          your lives. <!--EZCODE EMOTICON START :ex
          --><img
          src=http://www.fms-cfsfriends.com/board4/exactly.gif
          ALT=":ex"><!--EZCODE EMOTICON END--><br><br> We all have entirely different troubles and
          deal with it the best way we... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8224</guid>
			<pubDate>Tue, 27 Mar 2007 18:49:46 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8223/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8223</link>
			<description><![CDATA[ A few weeks ago I ordered my headsets through
          Amazon, but I chose Seller: pc_small, just scroll down
          here: (they are 7 USD, but I think they sold them for 5)
          <br><br><!--EZCODE AUTOLINK
          START--><a
          href="http://www.amazon.com/exec/obidos/tg/detail/offer-listing/-/B0002QLQ96/all/ref=pd_sxp_olp/104-8616196-0529511">www.amazon.com/exec/obido...96-0529511</a><!--EZCODE
          AUTOLINK END--> ]]></description>

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			<author>feeds@yuku.com (Sunshine56)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8223</guid>
			<pubDate>Tue, 27 Mar 2007 14:50:15 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8222/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8222</link>
			<description><![CDATA[ I use the prism glasses a lot: (no help if you are
          on your belly)<br><br><!--EZCODE IMAGE
          START--><img
          src="http://www.mosken.com/image1/prisme1s.jpg"
          style="border:0;"/><!--EZCODE IMAGE
          END--> ]]></description>

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			<author>feeds@yuku.com (Sunshine56)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8222</guid>
			<pubDate>Tue, 27 Mar 2007 14:42:37 GMT</pubDate>
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			<title><![CDATA[ Re: How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/reply/8210/t/How-do-you-cope-when-you-can-t-sit-.html#reply-8210</link>
			<description><![CDATA[ Penny, what a great thread you started!<br><br> Like Alice, I can hardly remember how it was
          to be able to sit! It started off as a reduced able to
          sit..to a full blown sitting disability around 10 years
          ago. I haven't been able to sit as I want for the last 21
          years.<br><br> I have got more and more of
          my life adjusted to lying down. But still there is lots I
          would want to do that I can't. Especially since I lost my... ]]></description>

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			<author>feeds@yuku.com (Sunshine56)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/sreply/8210</guid>
			<pubDate>Tue, 27 Mar 2007 14:40:01 GMT</pubDate>
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			<title><![CDATA[ How do you cope when you can't sit? ]]></title>
			<link>http://sunshine35446.yuku.com/topic/1160/t/How-do-you-cope-when-you-can-t-sit-.html</link>
			<description><![CDATA[ As a relative newcomer here, I thought I would settle in before I asked advice. <img alt="&lt;img src=" src="http://www.fms-cfsfriends.com/board4/chat.gif">&quot;&gt;
<br>
<br>
I see from the sitting disability topic, there are about 10 of you out there that like me, cannot sit at all, or for long. <img alt="&lt;img src=" src="http://www.fms-cfsfriends.com/board4/smash1.gif">&quot;&gt;
<br>
<br>
How do you cope with life? <img alt="&lt;img src="... ]]></description>

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			<author>feeds@yuku.com (ponolops)</author>
			<guid isPermaLink="true">http://sunshine35446.yuku.com/topic/1160</guid>
			<pubDate>Mon, 26 Mar 2007 21:05:16 GMT</pubDate>
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