Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Sunshine56) — Thu, 15 Oct 2009 15:21:45 GMT

Hi Katie, please post your question here:

http://sunshine35446.yuku.com/forums/65

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Mosken

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (katiehepburn) — Thu, 15 Oct 2009 14:54:27 GMT

I have been on 3000 mg. of Neurontin and while it curbed the neuropathic pain fairly well, I experienced so many of the side-effects that I was taking meds to counteract the side effects not realizing that that's what they were! Whew.... that being said. I am down to 1200 mg. a day and have been reading about Topamax. I am interested because one of the side effects may actually be a positive one for me...... appetite suppression. At minimum..... it should not result in weight gain as the...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Allis61) — Thu, 06 Aug 2009 17:06:33 GMT

Welcome to Friends, Nessy!

You have posted in our Information forum in our Archive, you will find our active forum here: Coping and Health problems >>. Post your question there. That way more members will read and give you response.

I'm Alice from Norway....

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (nessy) — Thu, 06 Aug 2009 06:43:47 GMT

It took me several months to adjust to Topamax, and for my doctor to get the right dosage for me. I'm very sensitive to meds, so 50 mg became the right dose for me initially. More than that and I was totally brain-dead! According to my neurologist, the longer you take it, the more effective it is. I'm now down to 25 mg per day, and it's effective. I don't notice the side effects anymore. Of course, I take it at bedtime. It helps me sleep deeper and longer - which I need...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (nessy) — Wed, 05 Aug 2009 09:06:04 GMT

Hi all,

I just stumbled across this page while researching Topamax side effects. I've read through all the posts and am stunned at how similar the experiences are to what I've experienced. Following a repetitive stress injury to my hand, I...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Sheri) — Sat, 17 Apr 2004 02:49:42 GMT

As always, this board is an amazing place of info!!

I've been bed ridden for the past 4 months, and saw a new Dr today that wants me on topomax. Not sure about it as I have only 1 kidney in which they've previously found stones, and kid. stones were a side effect of this med.

Looks like he also wants to treat me with drugs for mycroplasma ~ which from the info I have means taking whopping amounts...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Tue, 16 Mar 2004 03:10:39 GMT

Topomax is known as stupomax among people with bipolar disorder where daily doses are usually in the 400 mg. range. BEWARE of this drug.

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (EBGirl) — Sun, 13 Apr 2003 08:03:16 GMT

If you want to visit our Support Group's forum for health problems,
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If you want to see all the different forums for our support group, go to the front page

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Fri, 28 Feb 2003 10:02:40 GMT

I am so glad I came upon this sight, I started taking topomax about a month and a half ago and I am getting very forgetful with poooor concentration I have been thinking about stopping the med. But I think I will hang in alittle longer and see if it clears up . Thanks for the helpful insight!!!!!!!!!!!!!!!!!!

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (kiturah) — Sat, 25 Jan 2003 05:10:33 GMT

Rosi, I don't know. I 've read it is used for headaches. You were on 100 mg a day which is a significant dose. Dosage is decided by the doc, and I'm up to 400 a day and still get bad migraines. Every person I've talked to personally who was put on it for headaches did not have an outstandingly good result.

That is my "real world" friends, as opposed to my net world friends. for some reason, with my...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Rositaema) — Sat, 25 Jan 2003 03:34:22 GMT

I'm still torn on whether to go back on it or not. The neurologist said it is up to me. My migraines are out of control, but I did not notice a difference by the time I ran out & the side effects were a problem. Also running out, I had a pretty severe reaction to stopping like that. (Yes the doctor chewed me out)
Okay - I see I didn't answer the dosage question. I believe at the time they ran out I was on 25 mg for...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (kiturah) — Fri, 24 Jan 2003 13:37:13 GMT

Kim, sorry I missed you. Topomax rarely causes acute severe narrow angle glaucoma.

Kristi, my story about going on topomax is the 17th post in this section, it's on tan instead of white, the caption changes to my story, and it is long instead of a short post. It was for generalized pain, back and leg being big players but neck was right up there too. Everything else was less.

Welcome, both of you.

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Fri, 24 Jan 2003 10:05:37 GMT

Hi I was just reading what you all were reading about the stuff and i have just recent started it and gone off neurontin i have a 360 fusion done on my lower back and still have extreme pain in my left leg and back i am really hoping that this will help ... has anyone else used this med. for back and leg pain ... i really would like to get on with things and go back to work...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Wed, 08 Jan 2003 00:34:42 GMT

Hi, I was reading what you wrote about Topomax and your headachs. Thought that maybe you could enlighten me...
I'm 48, have had headachs all my life. I take Depakote for migraines. I have for several years now and it has been a Godsend. However, lately it is not working so well, and I have been taking ALOT of ibubuprofen, some Vicodin, sudafed etc. All of which don't help. None of the abortive drugs help, like...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (kiturah) — Fri, 03 Jan 2003 05:40:50 GMT

Welcome Bulldog and Scoot. Bulldog, we certainly welcome males, we need some more balance. I hope you will stop by frequently. Scoot, unfortunately I just blinded myself to your post in trying to be able to see both-I never seem to be able to figure out when I will more than one. I am a slow learner of the ins and outs on the boards. (Why you never see me at graphics.)

Nevertheless, I remember you were interested in...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Fri, 03 Jan 2003 02:26:20 GMT

Hello all,
Glad I found this page. Just wanted to drop a line. Supposed to be working here, but wanted to find out about this b12 thing. My levels are severely low and I am getting this shot every other day now. I am taking 100 mg of topamax a day and have been for about a year now. I feel like hell though but the pain has managed to subside some what. Just cant believe the side effects. Your page was a nice in-sight...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Thu, 02 Jan 2003 13:07:02 GMT

Hi all! Hope you all don't mind a 50 yr old male stopping in to see you all! I too have been Rx'd Topamax and am worried about the side effects! I was on it once a bit back but had some vision problems and they took me right off and then I had cataract surgery in both eyres with implants...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (Unregistered(d)) — Wed, 11 Dec 2002 14:47:10 GMT

hi my friends, so sorry I'm just seeing this ow- I, too, am taking topomax, I amm up to 100mg each night at bedtime- I do feel "fuzzy", and burn LOTS- especially in my FEET!

but I am DEFINITELY sleeping better- that is when I finally am able to actually, physically GO to bed

I take b vitamin complex too- over the counter brand tho

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (MeBColes) — Wed, 11 Dec 2002 11:28:20 GMT

I have a funky neurological misfire they call a "crash" migraine. Essentially, I've had a migraine, non-stop, since May of 2000. Luckily for me, it can be "dampened" by anti-seizure drugs. The beta-blockers did nothing but drop by blood pressure. The Depakote worked like magic (1000mg of Depakote ER). It also graced me with 30 extra pounds in 2 months and turned me into a Stepford wife. And then the...

Re: Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (DollieReed) — Mon, 02 Dec 2002 07:49:06 GMT

I was on a medication at one time for my high blood pressure that didn't list hair loss as a side effect but I had it... I looked like I was going through chemo I had so little hair finally my Dr switched my blood pressure meds and my hair started to grow back, maybe there is a different brand of the medication that you are currently taking that has less of the effect of hair loss than what you are currently taking.
Dollie

Topamax for Fibromyalgia and CFS pain

feeds@yuku.com (kiturah) — Thu, 21 Feb 2002 03:24:28 GMT

You have come to our archive. You're welcome to visit us in the active part of the board:

http://sunshine35446.yuku.com/forums/65
Mosken (the admin)

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