CFS - or ME?? Different names on the same disease

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (JaxKit) — Thu, 24 May 2007 22:43:54 GMT

Hi, Bec,

Indeed, there're loads information out there to digest regarding ME/CFS......it can get very confusing, especially when you're trying to pin-point why you have all these troubling symptoms, yet, most of standard tests reveals nothing.

One of the main reason CFS (or CFIDS) we have in US, is the 'name' CFS didn't cover all the spectrums of the disease....consequently, lots doctors out there don't believe in the disease, or...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (Beccapooh) — Thu, 24 May 2007 19:20:56 GMT
See, here's why I'm confused. I've been to the CDC's site; I've been to about a dozen other sites, too and they all seem to point in the direction that there really are two different conditoins out there. They mimic each other in many ways, but, not entirely. I've read that the US just 'decided' to change the name of M.E. to CFS and made it a much 'larger net', as it were, to encompass a much larger spectrum of conditions, ie. CFS, Fibro, etc.
...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (SunnyMary) — Wed, 23 May 2007 23:22:28 GMT
Nicely said, JaxKit.

BeccaPooh (that's an excellent username, by the way!), here's the US Center for Disease Control's criteria for diagnosing Chronic Fatigue Syndrome:
http://www.cdc.gov/cfs/cfssymptomsHCP.htm

Have a look around the rest of that site, too. It has a lot of good information!

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (JaxKit) — Wed, 23 May 2007 01:14:34 GMT

Hi, Rebecca,

I have ME/CFS for 14yrs now......I have a feeling that your friend's chronic fatigue may not be the true ME/CFS, simply as Chronic Fatigue Syndrome involves a whole lot more than 'fatigue' or 'easy fatiguebility'....the list of symptoms of CFS goes on and on, and on.

ME and CFS is believed by worldwide medical clinicians and researchers one of the same. In most Europepan country it is called ME, in US, it is CFS. That's one of the...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (Allis61) — Tue, 22 May 2007 17:49:06 GMT

You're also welcome to join us in our Smalltalk forum. This is the place for being social. We have a daily thread that runs day and night. It's a great place to get to know us a bit better, and we can get to know you.

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (Allis61) — Tue, 22 May 2007 17:42:48 GMT

Hi Rebecca and .

This is a only read forum, and not many will see your post here. I'll make a copy of the topic to our Coping forum. That is the active place for discussing personal and health problems. Hope you get some respond there. I know next-to-nothing about CFS/ME, so I can't give you any input.

Alice

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (Beccapooh) — Mon, 21 May 2007 23:40:44 GMT
I just wanted to jump in here. I'm new to the boards and I don't want to get off on the wrong foot, but with the research that I've done, I really believe that there are two different condtions. One is CFS and one is ME. I have ME. I have a horrible lookiing MRI and LP that clearly show I have problems. It was first thought to be MS, but with the LP showing only a high viral infection rate (can't quite remember the medical term for it, sorry) and no the correct...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (EBGirl) — Thu, 18 Jul 2002 05:51:08 GMT
Hi again BHound! I was just saving some abstracts info about encephalitis caused by EBV. I was so ill at one time, I truely thought I had encepalitis type illness, but of course the doc said, ohh no, you couldn't have, you would have been really ill and might have died. Oh really?????????haha, yeah I almost did. My organs were shutting down, and I was so ill I couldn't move. My spine was so inflamed and I had the headaches,...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (Battlehound) — Wed, 17 Jul 2002 19:31:23 GMT
Hello group I Live in UK and have had M.E/CFS for nearly 13 years. When I got it, it was first called PFVS (Post Viral Fatigue Syndrome) and then M.E but then this indicates inflmmation of the Spine and Brain which has not been proven to my knowledge and which a lot of people with the condition didnt have, SO CFS seems to have taken over now. I dont mind what they call it as long as we eventually get to understanding what...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (Sunshine56) — Mon, 04 Feb 2002 03:39:51 GMT
If you want to visit our Support Group's forum for health problems,
Click here

Or do you want to join our general chat?
Click here

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (EBGirl) — Fri, 13 Jul 2001 10:04:53 GMT
Yes, I do understand the "Chronic Fatigue" Label because for the first ten years of this, other than a few flus [which later I realized were epstein barr mono flare ups], all of my experience was mostly of fatigue.

I wonder if the progression of this illness becomes much more dibilitating symptoms later on in life, maybe triggered by some illness or stress. One doctor I spoke to [a woman doc]...

Re: CFS - or ME?? Different names on the same disease

feeds@yuku.com (EBGirl) — Tue, 10 Jul 2001 11:41:11 GMT
This link provides an overview of CFS, provided for CFDIS grants for research:
grants.nih.gov/grants/gui...6-070.html
Friends

CFS - or ME?? Different names on the same disease

feeds@yuku.com (Sunshine56) — Mon, 09 Jul 2001 01:53:41 GMT
I found this thanks to a website I got from Silver Cloud.

What is CFS ??

CFS - or ME/CFS - is a "Syndrome", i.e. a disease, for which the diagnosis is qualified by the collective sum of a number of specific symptoms. CFS is short for chronic fatigue syndrome, and is the term used by most researchers, in almost all scientific publications and used most widely by the public.

Why do some patients prefer ME ??
Among patient...