A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (fogggyrl) — Fri, 28 Mar 2008 22:59:06 GMT

jillybromley wrote:

Fogggyrl, I agree, it is an unfortunate Title for her book, but her answers to the interviewer held a different tone altogether, didn't they? Sometimes I wonder if the publishers have a hand in these rather dogmatic catch the eye titles for these sort of books?

Totally, Jilly. There was a complete disconnect between her title and her interview. That's a...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (jillybromley) — Sun, 23 Mar 2008 23:43:16 GMT

Thanks for posting this, Mosken. I read the whole interview and was very interested in two particular points that she mentioned.

Blood volume enhancement, by drinking a lot of water and a gram of salt a day.

Now this struck home for me, because of all the many, many different things that I've tried over the years, 2 of the things that have helped me quite a lot is drinking a huge amount of water and eating a lot of very salty food. (along with eating licorice,...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (fogggyrl) — Fri, 21 Mar 2008 17:22:28 GMT

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (Sunshine56) — Fri, 21 Mar 2008 13:25:10 GMT

We do get them, but usually in a personal message first. And they are told to have a different approach.

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (fogggyrl) — Fri, 21 Mar 2008 12:41:14 GMT

Hi Mosken and Virginia,

I see we're all in agreement. Btw, the grrrr wasn't meant because you posted it, it was my overall feeling I realize from the title. The grrrr was for that, not you. I am glad that Virginia got me to reread it though because the content of what Martha has to say makes perfect sense to me. I just think she should have a different title. I do believe that she may not be doing as well as...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (Sunshine56) — Fri, 21 Mar 2008 11:49:36 GMT

As for pacing, I've got that down. It's still progressing though. The other thing is there's nothing she talks about that's new to me. I've tried and or do all that.

I totally understand you. But we like to post provoking material! :-) sometimes it creates an interesting discussion. Besides, people with the same diagnoses are not alike. Maybe she was in remission or more moderately attacked.

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (amberlover13) — Thu, 20 Mar 2008 23:40:26 GMT

I hear ya foggyurl....Here at Friends, we have really denounced the "i've got a cure for you" crap that is rampant everywhere, so i knew that Mosken would never have posted anything claiming a cure We get folks coming here all the time trying to sell our members one cure or another....scams all of them. And they get shot down rather quickly here.
But you haven't really been...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (fogggyrl) — Thu, 20 Mar 2008 22:19:28 GMT

Amber,

I reread it and I see your point. I see at the end of the article that she says she hopes it will work for everyone. I realize now that she's not saying here's how to cure yourself. I was flaring badly when I read it the first time. Somehow I thought I'd read that they were saying the CDC was going to cure us! lol

I do like what she has to say about exercise and about salt and water. I agree with her views on those and really, everything else she...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (amberlover13) — Thu, 20 Mar 2008 20:45:42 GMT

foggyrl, we all here know that there are no sure cures for cf.....we've all been there....I think what mosken was trying to show was that there is some hope out there, at least for some of us. I think most of us here have learned that our state of mind really makes a difference in how we cope with our illness's, or how we don't! While there are no cures, no matter what anyone says, there are different coping strategies that will help us to live with it better.
And with no...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (fogggyrl) — Thu, 20 Mar 2008 18:59:31 GMT

I don't know. I feel kind of grrrr about this personally.. no offense. I appreciate the info you posted for us Mosken. And don't get me wrong, I'm happy for her. Time will tell. Maybe the CDC is going to cure us all. I hope so. But I am doubtful. Many of us can't take any amount of sleep or pain meds for instance, and CFS Specialists believe this is due to CFS itself. Many folks like me have kept up with all the research on CFS. We have gone to numerous doctors and...

Re: A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (Robin81) — Wed, 19 Mar 2008 23:53:42 GMT

What a fab article. Just reading the esperience of this lady has helped me recognise a lot of what I'm experiencing right now.
Thank you so much for sharing this.

A Chronic Fatigue Syndrome (ME/CFS) Patient Returns: the Martha Kilcoyne Interview

feeds@yuku.com (Sunshine56) — Wed, 19 Mar 2008 19:28:44 GMT

Martha Kilcoyne, the author of 'Defeat Chronic Fatigue: You Don't Have to Live With It" is living proof that people can and do return to complete health after being disabled by this disease. Ten years after she came down with a severe case of chronic fatigue syndrome (ME/CFS) and seven years after she recovered from it Martha Kilcoyne returned to tell her story.