California US
Sherry asked me to make some comments. I bet Lempsey can add alot. I have to go do research to do add to this. Actually I had to do some research to get this
much, and then I pulled on the laptoptoo hard, unplugging it. Henri blew my battery a long time ago and I lost all I had gathered, so this is only what I
remember.
1. Panax Ginseng 400 mg in the morning. I've written for a reprint request from a journal that tested 12 brands from health foodstores. If it looks important I'll come back in a week or so and replace this with brand names.
2. Evening primrose oil. Efamol is the best brand, but I started with another and could tell I was improving. 2600 mg twice a day.
3. Gingko biloba 120 mg twice a day
4. vitamins and minerals. B6-for most people 25-50 mg a day. That's what I originally wrote and what the Institute de Medicine endorses. In dealing with the orthomolecular people, I'm finding the commonly use higher doses and 100 mg a day is not a problem. B12 1000 mcg sublingual a day (the sublilngual formm is VERY important), Vitamin C 1000 mg a day, Zinc 60 mg a day and Magnesium 500 mg a day. You know I may recommend taking a great deal more magnesium as your gut tolerates for the pain. Go slow, and watch for diarrhea from too much magnesium. But it helps two kinds of pain, so it is important. 500 is where to start. Take iron if youare menstruating or tendto be anemic. Otherwise not. The iron makes hemachromatosis worse, and that is one of thecauses of symptoms like FM.
5. Co Q 10 100 mg
6. If you think you don't just have fatigue, but have CFS, an overwhelming debilitating fatigue that has you seriously incapacitated every day, and some days a little exercise will put you in bed for a week, consider trying a month of support: Pycnogenol 40 mg twiceaday. Glutamine, a DNA ingredient. 1000mg a day I guess this isn't a natural product necessarily. It is OTC. L-carnitine 500-600 mg twice a day OTC or prescritpion. This dose can be doubled easily. eNADH-10 mg once or twice a day. Chromium picolinate. 179 mg rhodiola. And a low sugar diet, especially if you have gained and can't lose weight.
To get the best use of this stuff and save money, get a date book or use this wonderful on line diary www.diarymanager.com/v2_fs.asp?uid=kit and write down how your days are every day for a week or longer as a baseline while you are gathering your supplies. After you have what you think is a good baseline, do this for two months, recording how you feel every day. Look at your answers the third month versus where your baseline is. Doyou see a change? If so something seems to be helping. I'm afraid you need the whole combination, but maybe not. Keep the rest, but drop the dose of the most expensive thing in number six to half. Keep recording your status. If it is just as good in two months, drop the dose of the next most expensive thing. If it got worse, raise the dose and wait til what you read in your diary says you are at the top end for a whole month before you cut the next most expensive thing in half. Get the picture? It is slow, but this time next year you will know a lot more about your body. No docs fees, just what you put into your body.
I wonder if someone wants to negotiate a Friends discount with an online pharmacy?
7. For mild stomach complaints, with nausea and vomiting in them peppermint, chamomile and ginger, plus seabands. I use them in teas and can't tell you doses, but a small health foods store proprietor probably can.
8. For severe cramping pain with the stomach, with fever see a doctor. If no fever, maybe you are okay without a doc, maybe not. I'm not making a recommendation about that here. An herb that has been shown to work is artichoke leaf extract. However if you are already not seeing one or seeing one and being ignored, I would seriously consider whether you have a leaky gut. If you can get a recommendation on whom to see to get worked up for a leaky gut from Great Smokies you are best off.
To see if you are in the right direction, fast. If fasting improves you like nothing else, you have a big clue. But you have to try it. Pedialyte and water, and that is it! You have your fluid and electrolytes. If you are really going to work on it on your own and fasting resulted in substantial improvement, you have a tough row ahead.
However this is a step most of the docs would give you anyhow, I think. Add only one or two easy to digest foods. And not processed ones. Preferably rarely eaten ones. One paper suggested lamb and rice, I think. But these days we eat lots of rice. I like the looks of fish or tofu- not both, plus a dark green veggie much better based on the pain and diet papers. One and only one fish (NOT TUNA-too much mercury) or tofu, your choice, plus one dark green and uncommon veggie, for the next, gag, two weeks. Say kale, itis cruciferous, rarely eaten, and anoily fish-mackerel or salmon, or if you hate fish decide in advance on tofu for your choice instead. Can you stand it for two weeks. All fixed at home. Take it with you to go to friends' houses. But how is your gut? Record your symptoms daily.
To get the best use of this stuff and save money, get a date book or use this wonderful on line diary www.diarymanager.com/v2_fs.asp?uid=kit and write down how your days are every day for a week or longer as a baseline while you are gathering your nerve or supplies.
Then add one single ingredient food you will prepare at home. What is it? A grain, with the thought eventually you will be able to eat complex foods? Eggs? A fruit? I recommend if the pain is bad, you do not go for meat. Pain studies look better in vegetarians on high amounts of fruit and vegetables. Keep recording your symptoms. Every two weeks a new food gets added. Any time your pain or other symptoms have a down turn by the time the two weeks is up, that food is lost though you can bring it back again in a new trial later.
If you failed to improve at all with the first two weeks, you have two choices. Either the leaky gut was irrelevant to you, or the two foods you kept, at least one was a problem. Consider.
The great news about this is, if you want to lose weight, you probably can during the evaluation period. And you can probably keep it off if you find out what was your problem.
If fasting makes you terribly sick, or rapid weight loss from a low carbohydrate diet makes you terribly sick, go look at www.chronicneurotoxins.com/ . That is terribly suggestive of neurotoxins emerging from fat cells.
9. I'm worried about these and don't recommend them if you have autoimmu e disease. I think that you may have one and your doc missed it if your lab work has any slight tendency that way, a slighty elevated sed rate or a weekly positive rheumatoid factor or anything. For recurrent viral infections including epstein barr: Propolis from bees. Or go to a Chinese herbalist and enquire about Chaihu. See the practitioner and pay. If you don't seem to have lab markers of autoimmune disease you 750 mg of black currant seed oil a day helps T cells.
10. For joint pain, devils claw root, 435 mg 6 total a day in divided doses.
11. For anxiety, passionflower and valerian
Do use extra virgin olive oil and garlic. Do not use canola oil.
Well, there is a start. And I forgot to mention, some of these interact with medicines, most notably, some are significant anticoagulants. If you are on medication, type a list and give it to every doctor and your pharmacist. And remind every surgeon who is planning on making any incision in your body.
I think with the whole group, you don't need aspirin, which Lempsey may have mentioned. But I can't see her post from here.
If I come to add more things, I'll make it a separate post, but if I modify dosages, I'll do so in this post. I wonder why the article on rhodiola used 179 mg? Why not 200, or even 180? There is food for thought.
1. Panax Ginseng 400 mg in the morning. I've written for a reprint request from a journal that tested 12 brands from health foodstores. If it looks important I'll come back in a week or so and replace this with brand names.
2. Evening primrose oil. Efamol is the best brand, but I started with another and could tell I was improving. 2600 mg twice a day.
3. Gingko biloba 120 mg twice a day
4. vitamins and minerals. B6-for most people 25-50 mg a day. That's what I originally wrote and what the Institute de Medicine endorses. In dealing with the orthomolecular people, I'm finding the commonly use higher doses and 100 mg a day is not a problem. B12 1000 mcg sublingual a day (the sublilngual formm is VERY important), Vitamin C 1000 mg a day, Zinc 60 mg a day and Magnesium 500 mg a day. You know I may recommend taking a great deal more magnesium as your gut tolerates for the pain. Go slow, and watch for diarrhea from too much magnesium. But it helps two kinds of pain, so it is important. 500 is where to start. Take iron if youare menstruating or tendto be anemic. Otherwise not. The iron makes hemachromatosis worse, and that is one of thecauses of symptoms like FM.
5. Co Q 10 100 mg
6. If you think you don't just have fatigue, but have CFS, an overwhelming debilitating fatigue that has you seriously incapacitated every day, and some days a little exercise will put you in bed for a week, consider trying a month of support: Pycnogenol 40 mg twiceaday. Glutamine, a DNA ingredient. 1000mg a day I guess this isn't a natural product necessarily. It is OTC. L-carnitine 500-600 mg twice a day OTC or prescritpion. This dose can be doubled easily. eNADH-10 mg once or twice a day. Chromium picolinate. 179 mg rhodiola. And a low sugar diet, especially if you have gained and can't lose weight.
To get the best use of this stuff and save money, get a date book or use this wonderful on line diary www.diarymanager.com/v2_fs.asp?uid=kit and write down how your days are every day for a week or longer as a baseline while you are gathering your supplies. After you have what you think is a good baseline, do this for two months, recording how you feel every day. Look at your answers the third month versus where your baseline is. Doyou see a change? If so something seems to be helping. I'm afraid you need the whole combination, but maybe not. Keep the rest, but drop the dose of the most expensive thing in number six to half. Keep recording your status. If it is just as good in two months, drop the dose of the next most expensive thing. If it got worse, raise the dose and wait til what you read in your diary says you are at the top end for a whole month before you cut the next most expensive thing in half. Get the picture? It is slow, but this time next year you will know a lot more about your body. No docs fees, just what you put into your body.
I wonder if someone wants to negotiate a Friends discount with an online pharmacy?
7. For mild stomach complaints, with nausea and vomiting in them peppermint, chamomile and ginger, plus seabands. I use them in teas and can't tell you doses, but a small health foods store proprietor probably can.
8. For severe cramping pain with the stomach, with fever see a doctor. If no fever, maybe you are okay without a doc, maybe not. I'm not making a recommendation about that here. An herb that has been shown to work is artichoke leaf extract. However if you are already not seeing one or seeing one and being ignored, I would seriously consider whether you have a leaky gut. If you can get a recommendation on whom to see to get worked up for a leaky gut from Great Smokies you are best off.
To see if you are in the right direction, fast. If fasting improves you like nothing else, you have a big clue. But you have to try it. Pedialyte and water, and that is it! You have your fluid and electrolytes. If you are really going to work on it on your own and fasting resulted in substantial improvement, you have a tough row ahead.
However this is a step most of the docs would give you anyhow, I think. Add only one or two easy to digest foods. And not processed ones. Preferably rarely eaten ones. One paper suggested lamb and rice, I think. But these days we eat lots of rice. I like the looks of fish or tofu- not both, plus a dark green veggie much better based on the pain and diet papers. One and only one fish (NOT TUNA-too much mercury) or tofu, your choice, plus one dark green and uncommon veggie, for the next, gag, two weeks. Say kale, itis cruciferous, rarely eaten, and anoily fish-mackerel or salmon, or if you hate fish decide in advance on tofu for your choice instead. Can you stand it for two weeks. All fixed at home. Take it with you to go to friends' houses. But how is your gut? Record your symptoms daily.
To get the best use of this stuff and save money, get a date book or use this wonderful on line diary www.diarymanager.com/v2_fs.asp?uid=kit and write down how your days are every day for a week or longer as a baseline while you are gathering your nerve or supplies.
Then add one single ingredient food you will prepare at home. What is it? A grain, with the thought eventually you will be able to eat complex foods? Eggs? A fruit? I recommend if the pain is bad, you do not go for meat. Pain studies look better in vegetarians on high amounts of fruit and vegetables. Keep recording your symptoms. Every two weeks a new food gets added. Any time your pain or other symptoms have a down turn by the time the two weeks is up, that food is lost though you can bring it back again in a new trial later.
If you failed to improve at all with the first two weeks, you have two choices. Either the leaky gut was irrelevant to you, or the two foods you kept, at least one was a problem. Consider.
The great news about this is, if you want to lose weight, you probably can during the evaluation period. And you can probably keep it off if you find out what was your problem.
If fasting makes you terribly sick, or rapid weight loss from a low carbohydrate diet makes you terribly sick, go look at www.chronicneurotoxins.com/ . That is terribly suggestive of neurotoxins emerging from fat cells.
9. I'm worried about these and don't recommend them if you have autoimmu e disease. I think that you may have one and your doc missed it if your lab work has any slight tendency that way, a slighty elevated sed rate or a weekly positive rheumatoid factor or anything. For recurrent viral infections including epstein barr: Propolis from bees. Or go to a Chinese herbalist and enquire about Chaihu. See the practitioner and pay. If you don't seem to have lab markers of autoimmune disease you 750 mg of black currant seed oil a day helps T cells.
10. For joint pain, devils claw root, 435 mg 6 total a day in divided doses.
11. For anxiety, passionflower and valerian
Do use extra virgin olive oil and garlic. Do not use canola oil.
Well, there is a start. And I forgot to mention, some of these interact with medicines, most notably, some are significant anticoagulants. If you are on medication, type a list and give it to every doctor and your pharmacist. And remind every surgeon who is planning on making any incision in your body.
I think with the whole group, you don't need aspirin, which Lempsey may have mentioned. But I can't see her post from here.
If I come to add more things, I'll make it a separate post, but if I modify dosages, I'll do so in this post. I wonder why the article on rhodiola used 179 mg? Why not 200, or even 180? There is food for thought.
Thanks for
always looking out for us. I sure do appreciate your
help. I am going to try some of this. I have used a
little of this in the past, but not together and
consistently. I did not keep a record of it either, to
see if I felt better. That is a great idea. 
