Mosken
Thank you for telling your story, Lori!
| Author | Comment | |||
|---|---|---|---|---|
 Sunshine56 |
#101 | |||
|
Posts: 41873 06/03/07 07:41
|
|
|||
|
||||
|
jillybromley |
#102 | |||
|
Posts: 2069 06/10/07 22:32
|
Hi Lori 
Thanks for taking the time to tell your story. It will help others to recognise what is happening to them with this condition, and hopefully be able to persuade a Doctor that it is more than just pregnancy pains! It is good to hear how much anti-inflammatories and muscle relaxants helped you, as sometimes with these conditions, Doctors are not sure what to give and it never does any harm to perhaps suggest something. We definitely have to look out for ourselves these days! I'm so glad that you finally got a Doctor who seemed to know what he was doing and diagnosed you correctly. It's a pity it wasn't done sooner. But your post will definitely help others in the same situation. 
|
|||
|
|
||||
|
Karrie |
#103 | |||
|
Posts: 1 06/24/07 04:13 |
Hi, guys!
I found this group and the two threads pertaining to SPD while searching for new information/treatment options. Unfortunately, it seems the U.S. is still in the dark. My ob/gyn knew nothing four years ago when I first showed her what I found online, and still knows nothing about it other than what I showed her four years ago as far as I can tell. She sent me to an ortho surgeon when I kept complaining about the pain months after my son was born. He showed me the inflammation on the x-ray and later injected me with a steroid. It was painless, and brought immediate relief to my pelvis area. He did not treat the sacro joint pain, or even seem to think it was related to the SPD. I saw a chiro several times to try to get relief, but he didn't seem to know anything about the right techniques/adjustments/whatever. Currently, I am pregnant again and already feeling inflammation at 17 weeks. I have widened my search and hopefully found a chiro who will treat me, even though he is in another state. He is certified in the Webster technique, and I am really hoping he has experience with this condition. I'll know more next week after I talk to him! The memories of the debilitating pain and having to use a wheelchair IN MY HOUSE have made me determined to get treatment this time. My 3 year old is not going to be very tolerant of a momma who can't move. 
I found some great sites listed here, and feel comforted in reading the stories posted. Thank you!!! |
|||
|
|
||||
|
juliepatt |
#104 | |||
|
Posts: 3 07/07/07 07:51 |
There is a web site that is just about symphysis pubis dysfunction, or posterior pelvic pain, pelvic girdle pain etc. Has a forum but not many postings
because it's new. Has information to download and much more. www.pelvicdysfunction.com
Julie |
|||
|
|
||||
|
jmrmichelle |
Question | #105 | ||
|
Posts: 1 10/18/07 14:22 |
Hi all, I just ran across this site doing a search for this chronic hip pain I'm having, at least that is what it FEELS like. I'm interested because,
I do know that I have the Symphysis Pubis Disfunction, sacroiliac joint dysfunction, etc., due to recent x-rays. The x-rays shows my hip as normal however . I
do have 2 herniated discs in my lumbar spine. I'm just trying to figure out (becaseu so far no doctor has been able to) WHAT is causing this hip pain!!!
Nothing I do seems to help! I've been to physical therapy, tried a gamut of different drugs, NSAIDs, muscle relaxers, pain killers, NOTHING works. Could
this pain be stemming from the Symphsis pubis dysfunction?? This intrigues me .... Thanks for any responses.
Michelle  
|
|||
|
|
||||
 Allis61 |
#106 | |||
|
Administrator
Posts: 6635 10/18/07 17:09 Alice
|
Hi Michelle and welcome to Friends. 
 I suffer from chronic back pain after several failed
surgeries.
I don't know much about Symphysis pubis dysfunction, but maybe some of our members have some input for you? I hope you will take your time to take a look at the rest of the board too. To get to know more about us you can click on our usernames at left here, and you get our profiles to read.
Quite a few of us has also posted more specifics in a Presentation thread in Smalltalk forum. We would love to have your presentation in that thread. Join us in our Daily chat (also i Smalltalk) and get to know us on a
daily basis.
|
|||
|
|
||||
|
jillybromley |
#107 | |||
|
Posts: 2069 10/18/07 22:22
|
Michelle
A very big welcome to the Board. I am jilly and I have CFS, so am not too clued up on this particular problem. But I do know that pain can be referred from one area to another. Just a thought. You seem to have tried just about everything, I wonder if you have considered seeing a chiropracter. They seem good at correcting imbalances in the body. Sometimes, it can be something that's seemingly unrelated, like a pain referred from somewhere else in the body. I had bad back pain from sacroilliac problems and a twisted pelvis but it has been 70% improved by the fitting of a special shoe recently, which makes me stand and walk differently. So I know that one thing can definitely affect another.  jilly
|
|||
|
|
||||
|
lndianScout |
#108 | |||
|
Posts: 3 11/09/07 15:06 |
I'm new here, so HI everyone..
I've noticed that SPD seems to affect more women than men, but I guess I'm the minority.. I'm a 49 year old male who developed Symphysis Pubis (congenital) pain about 5 years ago, and so my odyssey began. I've been thru the physical therapy, steroid injections (which caused my potassium to drop putting me in the CCU), iontophores with lidocane which did nothing, and many many more procedures that have yielded no results. so now I live my life with a walker and will eventually end up in a wheelchair.. my daily diet consists of Vicodin Oxycotin Darvocets Valium and more, I'm so disabled by this they have put me on SSI, it's very hard to function on all these meds.. I really feel for those who have this problem as it is life changing.. I believe that alot more study needs to be done on this disorder as it seems to affect many many people.. thanks for reading and this support forums.. Steve
Last Edited By: lndianScout 11/09/07 15:09.
Edited 1 time.
|
|||
|
|
||||
|
MicheleDunkerley |
Postnantal Pain | #109 | ||
|
Posts: 1 02/07/08 15:49 |
Hi
Has anybody else only had pain postnatally? I had my baby nearly 5 months ago and developed SPD immediately post natally. I was agony in the beginning but has now got to a stage where it is not improving any further. I can walk but experience lots of pain afterwards. Walking was my main form of exercise before getting pregnant so I am finding it very distressing. I am having physio and have also pained to see a chiropractor which after 5 sessions made no difference, although she did agree my pelvis is misaligned and she attempted to manipulate it back into place. I am now about to see an osteopath as I hope they may do a better job. I had loads of sacroiliac joint painat the end of my pregnancy but had for years prior to this more mildly. I just want to know that I will get back to normal at some point and will be able to walk in the future without pain. Does anyone else have a similar story and have any good advice? Thanks Michele |
|||
|
|
||||
|
Allis61 |
#110 | |||
|
Administrator
Posts: 6635 02/07/08 19:48 Alice
|
|
|||
|
|
||||
|
jennhalcyon1220 |
interesting forum...my story | #111 | ||
|
Posts: 1 02/18/08 13:48 |
Hi all! I am glad to have come across this forum. There is lots of great information here!
I am currently on pregnancy #3, 7 weeks, and had debilitating pain yesterday (which caused me to search for info today). While pregnant with my second son in 2006, I had a lot of discomfort on my left side, lower abdomen. Dr attributed this to round ligament pain. The day I delivered him I woke up and could not walk. I called the dr and they brought me in to the hospital, as I was 1 day past due date anyway. They told me I had probably produced an excessive amount of relaxin and that was causing pubic symphysis problems. I delivered my son after 4 hours of labor and only 8 minutes of pushing! He was 8lbs, 11 oz and was called a "rapid descent" baby. He was bruised and swollen from banging around against the birth canal, but I didn't know enough to ask if that banging caused ME any trouble. Anyway, on and off for the 12 months after delivering (while I was still nursing) I had days of extreme pain. I could not walk those days. It felt as though I had torn my groin muscle in half on my left side. I also had non-crippling pain in that region on other days. I started to think maybe I had ovarian cysts or an ectopic pg, so I went for an ultrasound...totally normal. Finally my primary doctor diagnosed me with sacroiliac malalignment/torsion (from physical exam, not x-ray). He gave me a chiropractic adjustment and sent me on my way. The pain and trouble decreased after I weaned my son, so I haven't given it much thought. But now I am 7 weeks pregnant with #3 and yesterday it started again. I was fine until about 10am and then I could not walk. I was in tears and my husband was very confused because it happened so suddenly. I took it easy (as easy as possible with a 3 year old and a 16 month old) and felt well enough to walk by about 4pm. I am so upset thinking that I may have to go through 30+ weeks of being pregnant and having this pain and inability to walk~! I have my first ob/gyn appt on March 3rd and I plan on printing out some of this info to take with me. Thanks for this great site and any info/advice is appreciated. Jenn |
|||
|
|
||||
|
Allis61 |
#112 | |||
|
Administrator
Posts: 6635 02/18/08 15:57 Alice
|
Hello Jenn and welcome 
I've made a copy of your post to a seperate thread. That way more of our members will read it. You find it here: http://sunshine35446.yuku.com/topic/8302 I left a comment to you in you profile.
|
|||
|
|
||||
|
Kimmysmomma |
#113 | |||
|
Posts: 1 05/03/08 16:45 |
YES!!! my daughter is a year old and I'm still in pain!! when I was 6 months preg I lifted to gallons of Milk and thats when it started. after 21 hours of
labor I had to have a c-section because of it. They sent me to physical thearapy When I was 6 months preg and I'm still going there. I saw a back
specialist.. he told me that it takes up to 2 years from when it happens for you to go back to being completely normal...I screamed threw my c-section and
tramatized my husband because the epadiral didnt numb my pelvis.and I could feel the pressure of them pulling her put..and yes getting the baby out did help.
but I still couldnt walk therw a store or anything for months and when they do the c-section it cuts therw your pelvis musels which sets you further back in
the healing process...The back specialist said that they can tie the bones togeather which they couldnt do for me because I have big babies and they can do
injections causeing scare tissue to form in your pubic area making the bones to stop shifting,,But I chickened out because I had to be awkae for that. needless
to say.. I'm still hurting and.. I get normal but then when I have my period it releases a hormone that makes things lose and hurt again. right now
physical theapy is trying to strenthen my musels down there so it doesnt do it again w/ my next one. we will see... I hope I have helped...it is a looong
journey..oh and when you breast feed it will also make your pelvis not heal until that hormone goes away..and I still pops out of place. I also found out threw
an MRI that I had a herniated disk in my lower back..and I was only 23!!
Last Edited By: Kimmysmomma 05/03/08 17:29.
Edited 1 time.
|
|||
|
|
||||
|
denisew32 |
Back Pain | #114 | ||
|
Posts: 1 05/10/08 05:24 |
My name is Denise from Illinois. I was in a car accident 14 years ago and dislocated my hip. I wake up in pain and I feel like I did thousands of sit ups. I
have three kids, do you think my dislocating my hip could be affecting me now?
|
|||
|
|
||||
|
Sunshine56 |
#115 | |||
|
Posts: 41873 05/10/08 06:31
|
denisew32 wrote: It's hard for us to say, Denise. Have you told your doctor about this? Welcome to the board by the way!
|
|||
|
|
||||
|
bouldermom |
hip pain | #116 | ||
|
Posts: 1 05/11/08 05:21 |
I have had chronic hip pain since 2005. In 1997 at age 24, my Dr. induced delivery a little early b/c he was concerned about the size of my son and my small
pelvis. had a normal vaginal delivery. I had a normal delivery, until the very last push when I delivered my son's shoulders. Then we heard a loud
'pop', which the doctor thought was my son's clavicle.... at first. I had an epidural, so I didn't feel anything. He told me I had separated,
'popped apart' at the cartilige joining the two sides of my hips. They didn't do anything about it. I had some instability and crunching, grinding
sensations while walking for several weeks after this, but then didn't notice any problems. Since then, I have gad two more children, (c-sections, and not
because of the diastisis symphysis pubis). three years ago, my youngest was a year old and I decided to start running. I was doing great, getting in great
shape and losing weight. Then one day after doing hills my lower back started to hurt at the SI joint-right side, then my right hip began to hurt, and I
couldn't run anymore. I tried to back off the running, hoping that would make things better, but I've not been able to start up a running program since
without my hips getting aggravated I can't (fast) walk for more than 15 minutes before I start getting sciatic pain starting right behind the top of my
femur and running down my right leg to my knee, and sometimes both sides start acting up. I have seen the orthopedic surgeon twice, physical therapy, and
chiropractic with no relief. I have gained about 20 pounds after this last pregnancy because of inability to maintain an exercise program and depression. I
found this site trying to find information about sciatica and hip pain from running. Because I had no problems after the diastisis healed, I didn't even
think of this as a cause for my hip pain eight years after the fact. What do you think?
|
|||
|
|
||||
|
Allis61 |
#117 | |||
|
Administrator
Posts: 6635 05/13/08 14:51 Alice
|
Hi Bouldermom and welcome to Friends.
I'm sorry I have no advice regarding you pain. I don't know much about pelvis problems. But you may find a great deal of information if you look round a bit. This is only the first page of many with topics of all sorts. Use the tag-box on top of each forum and click on the word you're looking for information, or use the Search/Advanced Search in top right corner. You'll get a list of any topic that deals with what you're searching for.. 
You will also find a great deal of information in our Links forum >>> Hope you find something that will help you. 
Alice
|
|||
|
|
||||
|
greenisle |
Hi | #118 | ||
|
Posts: 1 06/08/08 08:23 |
Hi Girls,
I hope you don't mind me joining you all. Mosken, I live in Norway too (in Oslo) however I am not from here. Lori, I can relate to a good bit of your story although it did not start with me till about week 30 or so and was just swollen feet no real pain and at that time she suggested jogging shoes. From there it on it progressed very rapidly and four weeks later (during holy week) it was clearly full blown SPD and very sever from. She did not have enough time to do anything about it (I had baby via elective c-section at 39. I know that in Norway there is a support group for it. I am wondering if Mosken can provide me with the link for it. I am finding it difficult to find a physio. The hospital provided me with a letter but no list of physio's specialising in this condition!!. I am looking for the site but have not been able to find it. I know it is something like BLK.no or somthing like that. regards Green |
|||
|
|
||||
|
Allis61 |
#119 | |||
|
Administrator
Posts: 6635 06/08/08 15:24 Alice
|
Hello Green and welcome to the board!
I'm from Norway too, but the west coast - Bergen. Sorry to hear about your health problems. I believe the organisation you are talking about is Landsforeningen for Kvinner med Bekkenløsning (LKB) You find their web-sites on this link: http://www.lkb.no/ Nice to meet you, and hope to see you around more! Alice
|
|||
|
|
||||
|
Amarie |
#120 | |||
|
Posts: 1 06/22/08 15:10 |
Hello!
I'm currently in the 27th week of my 2nd pregnancy, and I'm from America. Since I was about 4 months along or so I've been having a lot of chronic pain in my hips, lower abdomen, and groin. For the most part it felt like pulled muscles, but as time passed it never got better. If anything, it has just been getting worse. If I move in ANY way that forces me to move my hips then it's extremely painful. Most of the time I cannot stand up or walk without someone helping me. Even when I'm sitting or laying down the pain is there sharp as ever if I attempt any movement. I saw my new doctor for the first time 2 weeks ago and he suggested that it was ligaments that have been relaxed, which I hear is common enough. Even so, the pain is excruciating and definately interferes with everyday life. Especially if I'm home alone. If I've done any sort of exercise whether it be walking or swimming, it usually leaves me to the point where I cannot move at all for the pain is too much. When I go back to the doctor next week, I intend to tell him the troubles I've been continuing to have with this, but will it do any good do you think? Is this something that is just going to have to be ""Endured""? I did not do this with my first pregnancy. And as for being overweight, I haven't gained but around 15 pounds or so thus far. Any feedback would be great! Thanks, Amarie |
|||
|
|
||||
|
amberlover13 |
#121 | |||
|
Posts: 20126 06/23/08 01:16 Moderator
|
Hello Amarie,
Welcome to Friends.... Like you I had no problems during my 1st (and consequently only) pregnancy. But IF I did, I would certianly would discuss this with my doc at length. You shouldn't have to "Endure" anything if you don't think it is normal.....and we are, after all, the foremost authority on our bodies, eh? I imagine others here will have more info to give you, Virginia |
|||
|
|
||||
|
havheg |
#122 | |||
|
Posts: 4509 06/23/08 10:47 Moderator
|
Pelvic pain/hip pain is unfortunately something that occurs during pregnancies. The pregnancy hormones loosen the ligaments around the pelvic joints to enable
the baby to pass through the birth canal during delivery.
The pain comes from the loosened joints moving more than normal, thus causing inflammation and cramping in the muscles and occasonally disturbing the alignment of the bones in the joints. How much these ligaments loosen and how much pain this give is individual. Most women experience only slight discomfort, while a few become seriously disabled with pain. Most women who experience severe pain during pregnancy do get well during the months after the delivery, when the hormones go back to normal and the ligaments tighten naturally again. During the pregnancy there isn't much you can do about this. Be careful about painkillers since these can affect the baby! Always talk to your doctor before using medications while pregnant, this goes for non prescription drugs as well as rx medication! The best advice I can give you is to listen to your body and not push yourself over the painlimit. That may mean you have to reduce your activities to a minimum and get plenty of rest. If walking is difficult it can be a great help using crutches or even a wheelchair for a while. If you take care now you have a good chance of getting 100% after the baby is born (although this may take up to a year). Secondly you should see a good physiotherapist. A PT who is knowledgeable in treating pregnant women can help you a lot with aligning pelvic joints and easing muscle cramps, as well as help you with light exercise to keep the muscles working properly. |
|||
|
|
||||
Jilly
USA
- Introduction
- Smalltalk
- Coping and Health Problems
- Information Links-Fibromyalgia, Chronic Fatigue Syndrome, chronic pain-back pain
- Young Adults and teens with FMS-CFS, Fibromyalgia, Chronic Fatigue Syndrome, chronic pain, Mono EBV virus!
- Forum for Kroniske Smerter
- Småprat
- Informasjon om kronisk smerte, ryggsmerter,Fibromyalgi,bekkenløsning og borrellia
- Arkiv - ikke helserelatert
- Slektsforskning - Genealogy Forum
- Photography - Graphics - Computer talk
- Announcements and Friend's rules
- Fibromyalgia Syndrome Pain Research Information
- American Social Security Disability SSDI
- Archive for Graphics/PC Tutorials
- Archive
Quick Reply