Jonathan

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tecjb		#21	[url]	[-]
Posts: 1674 07/19/08 22:47 Insomniac USA	guys. Well, today he had a long day. He woke up early (at 6) and then around 11 went to see Batman with his sister and brother. He came home and didn't have much time to rest before I dragged him to the hair styler- to have them do something with his hair. He wants to go to camp tomorrow (yeah, I'm letting him go- it's only 1 1/2 hrs. from here in PA and he's in need of being with his friends- and there is a hospital 10 minutes from the camp). By the time we got back he said he was feeling pretty "crummy". He said he "thought" he had a headache. Probably low pressure he thought. It's hot, and he's been upright the majority of the day- so it makes sense to me his head might be hurting today. So... he's lying down now- and we will see how he does. He's doing his wash, however he doesn't know if he will be able to go to camp tomorrow- although he really wants to. His girlfriend will be there- and he's wanting to see her. I'll drive him later if he can't go. I'm just hoping that this isn't really a "high" pressure headache and he's clogged already.....
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Mairzii		#22	[url]	[-]
Posts: 685 07/20/08 07:40 USA	Bleh ... I hope you're right and there's no new blockage! Best wishes for you both!
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SunnyMary		#23	[url]	[-]
Posts: 4267 07/20/08 17:24 Mediator Babe Moderator USA	Leslie, how are YOU feeling? Are you hanging in there?
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MoodyBelgium		#24	[url]	[-]
Posts: 3745 07/20/08 18:22 Sleepwalker
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jillybromley		#25	[url]	[-]
Posts: 2231 07/20/08 18:31 Jilly in UK	I do hope Jonathan is able to go to camp and that there is no blockage ... I'm really praying that it is properly in place and will give him good permanent relief .... Prayers for you and all the family, Leslie ...
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tecjb		#26	[url]	[-]
Posts: 1674 07/21/08 11:09 Insomniac USA	Mary, you know how it is on that roller coaster, I'm now dragging and exhausted and my body is in a TON of pain. I still have such severe sleeping issues- those are really doing me in. I don't know how this body keeps going- it just does. Now I have picked up something- a cold thing. The doc. at the clinic has it too, so I'm assuming I got it there last week when she begged me to come in for a couple of hours and help her. However, at least this has put me into one of those massive sleep cycles which started last night but now I really feel cruddy. Going from a couple of hours of sleep to excessive amounts of it is just hard on the body. Of course, now I'm thinking about Jonathan too- I'm not a worrier- but... what was I thinking in letting him go? (other than to get rid of him while he's so crabby and make him a little happy being with his friends- and who can blame me for that?) He was actually trying to lift his suitcase out of the trunk of the car- and I yelled at him. But what did he do? Carried it up a few steps after I got it out. I yelled again. He's a kid- what do I expect? Not that he thinks that's a big deal- he's going to be 17 next week, I'm sure he thinks he can lift his suitcase and carry it up a few steps- however.... he doesn't know that he's not healed "internally"... he's not got the "medical" knowledge to handle himself. I think I'm going to call the camp this morning- and just remind him. At least then I'll feel better that he knows what he should be careful about. I really think I need a vacation- one without any of the family... to an island with no people, no phones, and maid service to take care of my every whim.... ahhhh, what a nice dream! Thanks for the prayers guys... he's got horrible incisional pain- but his headaches are gone from high pressure and he only gets low pressure headaches occasionally and they are NOTHING like they used to be. I'm VERY hopeful about this shunt- as long as it keeps working!
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havheg		#27	[url]	[-]
Posts: 4615 07/21/08 13:20 Moderator Norway
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Ravenstardust		#28	[url]	[-]
Posts: 2103 07/22/08 06:49 Watcher USA	Hon I'm bout ready to pass out . I'm really sorry about all this ... I'll post in the morning
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SunnyMary		#29	[url]	[-]
Posts: 4267 07/22/08 21:32 Mediator Babe Moderator USA	Mary, you know how it is on that roller coaster, I'm now dragging and exhausted and my body is in a TON of pain. I still have such severe sleeping issues- those are really doing me in. I don't know how this body keeps going- it just does. Oh boy, do I know how that roller coaster works. There are a number of times this spring where I thought, "How am I able to keep doing this? And how much longer can my body keep going before it crashes completely?" Leslie, I'm a little worried that your body is going to crash really badly (worse than it already is) once some of this lifts. I just don't know what to suggest - in this country we don't have proper medical/social support structures in place for people with chronic illnesses. I think it's probably a good thing that Jonathan is off to camp for a bit - at least it will get him out of the house and perhaps give you a few moments here and there to breathe. (Hopefully, you'll be able to make a few of those chances for yourself if at all possible.) Try to hang in there, woman. I'll be thinking of you. It's incredibly difficult to deal with these family crises when you're ill. It's hard enough to cope with our own bodies going haywire - it's even harder to take responsibility when loved ones are having trouble.
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Mairzii		#30	[url]	[-]
Posts: 685 07/23/08 09:40 USA	Here's hoping all will go well for him at camp, and that you'll be able to get over your cold quickly and rest up!
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tecjb		#31	[url]	[-]
Posts: 1674 07/24/08 01:39 Insomniac USA	Oh boy, do I know how that roller coaster works. There are a number of times this spring where I thought, "How am I able to keep doing this? And how much longer can my body keep going before it crashes completely?" Isn't it amazing how the human body just "keeps going"? Better than the energizer bunny! Seriously though, being sick like I've been and then so sleep deprived... it's suprising I'm not in some psych ward somewhere in a straight jacket! I have to agree with you that it seems like there's going to be some point where my body just won't keep going- but I have to tell you I think it does because of this alternative doc. I see in Pennsylvania. I don't know what she does- intuitive medicine or something funky like that... it's REALLY strange... but I know it helps. I don't think it's making me better (probably because of the stress that I'm always living in) but I think it's really keeping me from crashing. I also need her for the pain- because whatever she does- it works to reduce it. It is good that Jonathan is gone, but you know when I was at the clinic on Monday (they were just gone a day) the doc (who is the kids doctor) said to me "so.. when are you going to take care of Ben?" I wanted to croak! I've been fighting this medical battle with Jonathan for a year- we've seen specialist after specialist and no one would listen to me- and FINALLY he gets what I think he needs... and a few days later someone is asking me about the next kid! I want to be FINISHED with medical stuff for a while! I told him I would need some time to recover... it's been a grueling year, and I really need to have a moment of peace. I know I can't wait long, but I definitely didn't need that reminder.... it was too soon after the agony of caretaker- and like you say... it's horrible because I really need someone to take care of me... but can't because I've gotta take care of them. Even working is becoming such a hard thing to do.... but financially the medical bills are killing us- so I have to work. I just don't know a good solution- I really don't think there is one!
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Mairzii		#32	[url]	[-]
Posts: 685 07/24/08 20:48 USA	Ouch ... Sorry to hear there seems to be no end in sight. Maybe you should start planning a weekly "me day," to help you cope?
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