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 Gracewings |
Fibromyalgia/ADD linked? |
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Posts: 189 11/13/02 01:05 |
This website offers a new perspective by making a link with FM and ADD. If you (like me) have way too many days with brainfog, or neurotransmitters that
(seemingly) go haywire, you will find some very interesting things. Here, I'll just give you a link and let you make out of it what you will. ;)
Last Edited By: Sunshine56 02/15/08 21:04.
Edited 2 times.
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MoodyBelgium |
Re: Fibromyalgia/ADD linked? | #1 | ||
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Posts: 3789 11/15/02 17:24 Sleepwalker |
HI Grace, you forgot the link
 . Can you
give it?I'm very interested. Moody |
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Gracewings |
Re: Fibromyalgia/ADD linked? | #2 | ||
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Posts: 189 11/18/02 12:15 |
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amberlover13 |
Re: Fibromyalgia/ADD linked? | #3 | ||
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Posts: 20560 12/07/02 11:44 Moderator
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Hi Grace,
I don't want to burst anyones bubble, but I have been on Metadate (ritilan which lasts for 8 hours without the highs and lows) in combination with wellbutrin, Buspar, as well as pain meds and flexerall. I have varied the meds many times, but I have unfortunately had no pain relief from the combination of meds. I hope it works for someone else. Virginia |
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Sunshine56 |
Re: Fibromyalgia/ADD linked? | #4 | ||
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Posts: 43117 01/07/04 21:18 Mosken
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Bringing up for new people.
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mlmfrog |
Re: Fibromyalgia/ADD linked? | #5 | ||
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Posts: 2 03/31/04 10:46 |
hmmm...
Excuse my grouchiness, no offense to anybody... but could the reaction of 'no pain' simply be a side effect from the stimulants? I remember when I was on Concerta, I was pretty darned happy. thanks for hearing me out... lol Maryann |
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andemsum |
Ta-Da | #6 | ||
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Posts: 3 02/14/08 21:44 |
I am taking Topamax at 100 morning and night increments soon to be upped to 3xs a day to a grand total of 300 a day. It makes my fingers and toes fall asleep
and is a little annoying but tolerable compared to the pain. It also causes mind fuzziness but tolerable to the pain. Both side effects decrease go away the
longer it is taken, the down side to it is it takes awhile to work. My Psychiatrist does not believe I have add because anti depressant make me really crazy
and work opposite.
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Sunshine56 |
#7 | |||
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Posts: 43117 02/15/08 21:13 Mosken
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Welcome to our group! If you want to join our talks, please visit our active coping forum:
http://sunshine35446.dmc13.yuku.com/forums/65 |
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andemsum |
Exercise! | #8 | ||
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Posts: 3 02/16/08 15:04 |
I have had no relief with exercise of any kind. It just seems to make the pain worse no matter what. I walked slowly for 15 minutes I suffered 3 days I
fell down on my but not even a bruise could not get out of bed for 3 weeks. So my doctor tells me what type of fms I have, my body is telling brain who is
relaying back to my body the wrong message. That instead of walking to the mailbox I went to Fiji instead.He did recommend that when I do feel well to take
short walks whenever possible. I just get tired of people that do not understand what this is telling me what is wrong with me and what will make me feel
better.thanks for listening.
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Allis61 |
#9 | |||
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Administrator
Posts: 7285 02/16/08 15:48 Alice
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Hello Andemsum and welcome. 
I just get tired of people that do not understand what this is telling me what is wrong with me and what will make me feel better.thanks for listeningI think you'll find that most of our members have the same experience. I've sent you a personal message (PM) Look for the little letter icon on top of the page. Click on this to read the message.
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jillybromley |
#10 | |||
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Posts: 2434 02/17/08 12:46
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Hi There, Andemsum It's very frustrating when people and Doctors who don't understand, tell us we should be doing particular things like walks for example. Yes, we all know how good walking is for normal members of the public who don't have particular health problems. I would love to be able to go for walks, but if I do then I spend the next 24 hours in agony with my muscles and with my energy levels at Zero, so that I can't even get out of bed to make myself a cup of tea, and spend the night having severe leg cramps. These people and Doctors cannot begin to imagine what it is like to have these conditions that we have to deal with, and because of that they sometimes say innappropriate things. Your best guide as to what you can and can't do, is your own body. Listen to your body, be gentle on yourself. Do what you can when you can, but don't push yourself beyond your limit as that can send conditions like CFS/FMS plummeting and taking weeks or months to recover again. 
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andemsum |
Thank you. | #11 | ||
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Posts: 3 02/18/08 22:54 |
Thank all of you for being here or there or where ever you are. I have resorted to a wheel chair. I want to be with my family my son is 7 he love museums
I cannot go through even half without getting too tired and muscle pain beginning. I do not know what else to do.
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jillybromley |
#12 | |||
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Posts: 2434 02/19/08 21:13
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Hello Andemsum We have to use whatever we need to, to make life more comfortable at any given time. It does not mean it is a step backward for you to have to use a wheelchair for long or tiring outings. It is a very sensible and practical thing to do. If we try to struggle to do things that are beyond us, it only makes the situation worse in the long term. Given time and rest, your muscles could improve again, and you may not have to use your wheelchair so much. These conditions fluctuate a lot, sometimes the pain in my leg muscles is crippling, but then a few months later it might not be so bad in my legs but has moved to my shoulders or something like that. It seems to me that whatever muscles I overuse seems to cause me pain, so I try to balance it out and not use any set of muscles too much. I think it's wonderful that you take your young son to museums ... how interesting that must be for him, and how much he will learn. What a great parent you are!
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Chronic pain, Fibromyalgia, Chronic Fatigue Syndrome, CFS, ME, backproblems, support groups, kroniske smerter, Fibro, Fibromyalgi, ryggsmerter, ryggproblemer, kronisk utmattelses- syndrom.
Abbreviations: CFIDS - Chronic Fatigue Immune Dysfunction Syndrome, ME - Myalgic Encephalomyelitis, FMS - Fibromyalgia Syndrome
whoops,
must've edited it out, thanks for letting me know
USA
Jilly
